I’m on my way ......

 A very busy and extremely frustrating two weeks since my last post with once again, Social and Health care unable to agree who is responsible to help with my ongoing care. I can’t knock the efforts of the professionals who deal with me personally as I know each of them is doing their utmost and giving their input in order for the panel to come to a decision. Unfortunately it appears my rate of rehabilitation, wound healing and self sufficiency all needs to be quantified. The facts that my skin heals then breaks down again, my pain is worse some days than others and that the fit of my prosthetics varies throughout the day aren’t measurable so can’t be taken into account.  The crux of the matter isn’t whether I need help with my ongoing care, it’s who is going to fund it. In the meantime, David provides my constant 24 hour care on his own. Selfishly, we have been fortunate that David has been furloughed from work but with his return to work being imminent, no matter how much I ...

 Well it’s been quite a while since the last update (“Thank goodness!” I hear some of you cry 😂) ...but it’s been an extremely busy and tiring couple of weeks Early last year, when prosthetics services were suspended in our area, David found a fabulous company  https://www.yourkoalaa.com/  who provide affordable and practical solutions for those with upper limb differences. We were able to sort one of their Mitts for me but I really got very little opportunity to use it while I was in hospital. When I came home, I found it no longer fitted as my arm shape and condition had changed so much. We contacted them and the guys there totally redesigned mine and what a difference it has made! I honestly can’t describe the feeling of being able to do simple things such as brush my own hair and sign my name 😀. I’m using it more and more for mealtimes but have to admit that without having a wrist to rotate it’s a bit of an acquired skill. I also managed to finally have my hair cut....

 This week I’d like to discuss the importance of support. It’s been an excellent week in terms of Sepsis awareness. I had a message from a lady who, like me, had also survived Sepsis but only found out from the blog about the Sepsis Trust and the support that is available. While it’s good to know that the blog can go a little way to helping others, it’s a shame that patients who leave hospital following any condition aren’t routinely given information on the various support groups and organisations out there for them. That awareness could not only help them but also maybe ease the strain on NHS resources further down the line. I’ve said previously that I’d like the blog to be an honest reflection of the day to day challenges amputees face and one that I hadn’t yet come across was  Health and Social care assessment. This week I was the subject of a discussion between two departments on who would be responsible for my ongoing care. I’m not going to use the blog to dissect the wh...